Saturday, 20 July 2013

Nye Bevan Started This

I’m so used to travelling to the hospital by now that the car drives there itself.  Two roundabouts, four sets of lights, swerves, chicanes, zebras, staff arriving on shift in a steady stream, patients drifting the roadway like clouds;  a world of purpose melding with a world of the lost.  In the strong early sun the features that endear this outpost of the NHS to me  are all still present.  Gangs  of smokers, babes in arms, dressing gowns flapping cluster the entrances.  Consultants in suits rattle into their mobiles as they stride the stairs.  Ancillary staff, mouths full of crisps and coffee, dot the summer grass. 

Along the corridors which run back from that entrance-framing and slightly frightening full-length portrait of Nye Bevan, founder of health free at the point of need, the crowds surge.  There is purpose here. Overweight administrators roll Tesco trolleys of paper files, patients are on sticks, the   tattooed limp, there are  mad bastards in gaping gowns.  Heading for the clinics are the aged in catalogue shoes,  the young on their career paths to glory,  well-meaning volunteers, new patients, returning visitors, the don’t know what work is, the can’t be bothered. 

I’m in the hands of physiotherapy, the latest referral  in the Service’s attempts to still my synovial cyst.    I’m signed on for a series of sessions in the gym.  It’s called back2basics or something equally uninspiring.  I ask at reception and the woman there isn’t sure what it’s actually called either.  You wait here, love, they’ll call you when they’re ready.    

Stoically  I sit myself among the limping and the lame, the wheelchair bound, the stick bearers, the becrutched;  those carried here, and those who stumbled in on their own.  Are these to be my fellow gym mates?  Nope.  They’re real patients around whom hope drains away like sand.  On the wall are adverts  for support equipment including an ergonomic aluminium exoskeleton that could have been designed for Rocket Man.     

With my pain in retreat I feel I should be at the David Lloyd not here.  Inside it’s like being back in school.  A 50s set-up of varnished wooden wall bars, beams, ropes hanging from a high light-filled ceiling.  All that’s missing is a vaulting horse.  In its stead stands a fan and next to it a water-cooler.  Be sure to drink from here often, instructs the instructor, ice-cold mouthfuls in cardboard cones.

There are nine of us with everyone on the surface looking fit enough to run for charity.  In a side room there’s a mad bugger wearing camouflage shorts and covered with tattoos at a density thicker than burning tyres.  He has slash scars across the side of his head and a face that would frighten ships.  Staff are measuring the strength of his grip.  He once, I imagine, could crush scaffold poles and punch holes in reinforced doors.  Is he with us?  No, thank god, he’s not.

We are each given a set of forms to complete which, in addition to the usual identity questions, ask us how we feel about the lives we live.  Write down an activity you find hard to do and measure how much pain is involved on a scale of 1 to 10.  The guy next to me, who looks like Nick Hewer from The Apprentice, has written Harry Belafonte down as his name.  I’m sure this can’t be right but I let it pass.  His hard to do activity is picking up pieces of toast from the floor.  I think for a bit then put down shopping at Homebase as mine.  

We set to.  There’s stretching, floor mat work reminiscent of Pilates, circuits, sessions on a treadmill, stepping on and off a bench while holding a fairly heavy medicine ball.  Do this in your own time and at your own level, yells the instructor.  A guy in a Superman t-shirt is running at sprint pace on the machine while a woman in a loose-fitting ensemble sourced from Laura Ashley has given up and is collapsed at the side waiting for world to slow down.

I crack on, sweat coming out of me like rain.  It’s the old days back.  Step up, breathe, step back.  Chuck the ball at the wall.  Catch it.  Squat, stand, leap in the air.  That’s it, shouts the instructor, go for it.   I do.   

After twenty minutes or so we are told to stop.  We cluster in a heat-ridden clump around the gym’s single fan.  That’s given you all an idea of what we’ll be doing over the next five weeks, Norman tells us.  I think that’s his name.   No mention of backs.  Amazingly mine still feels fine. 

Out at the lockers a guy who reminds me of Tony from the Sopranos tells me he’d normally run a mile rather than exercise.  But running a mile is exercise, I reply.  Guess it is, he says, unfolding a crushed jacket from his brand-new red Cardiff City rucksack.  But I did enjoy it all.  Sweat drips off my nose and fans out like Australia across my back.  Me too. 




     

Monday, 1 July 2013

The Psychic Centre

The way to overcome the synovial cyst pressing the spinal nerve is to hang the leg down below the peddle.  It’s a cycling technique I’m proud of, makes you look like a boy racer ready to round a corner at speed.  Although doing this on my folding Bromfield - small wheels, no crossbar, handlebars like a giant bottle opener - can look somewhat surreal.

There’s something about these bikes that makes teenagers shriek.  It happens again today.  As we roll up through the crowds along Churchill Way, the feeder hidden deep beneath us, a gang of bright sparks at a bus stop start the cat calls.  ‘Come on boy, get your feet turning, push those peddles.’  Why? Better than chants of  **&!!!***   I guess.

Bikes are certainly the best mode of transport for post-Polymyalgic, lower-spine synovial cyst sufferers.  There can’t be that many of us out there.  I'm down to 2 mg daily of the wonder drug and the cyst is falling in and out of focus like pulsar.  Sitting is about the only sure relief I know: the spine opens and the the pressure on the cyst reduces.  Doing this on two wheels lets you move about as well which makes it just about perfect.

I’m leading a psychogeographical tour of Cardiff, and doing it by bike.  There are twenty of us, all winding our way through the city centre.  It’s Saturday afternoon and the sun is uncharacteristically blazing.  The streets are dry and full of the joyful.  The pubs and bars have spilled out way beyond the confines of their smokers-only enclosures.    Shoppers in t-shirts have their arms full of brand new purchases.  You would not know there was a recession.

We’re heading up to the place in Park Lane where Bute’s Dock feeder, a sort of canal without boats built to fill his first West Dock with water, emerges briefly.  It’s there, stuffed into a two foot gap, fifteen feet below us, darkly surging.  Everyone is terribly impressed.

After this it’s the Glamorgan Canal underpass at Kingsway and then the psychic entre of Cardiff.  Everyone wants to reach this spot.  The psychic centre – a place of power and mystery.  I’ve told them all that this is what it is anyway.

We get there through the surging crowds leaving Bute Park, decked in Help For Heroes t-shirts and Battle of Waterloo military hats made from cardboard.  It’s Armed Forces Day.  I’d forgotten.  The tattoos and the beer swill down the pathways.  “This is Cardiff’s psychic centre,” I announce just as the refuse collection service arrives to empty the bin next to which I am standing.  I plough on regardless. 

“Here,” I tell them and the massed bus queues and straggling car parkers who have all moved I  towards me to hear what’s happening. “Here is where the power lines cross.  The Roman roads north and east and west,  the canal with its iron and coal, the ley lines running down from the Beacon’s standing stones, the secret tunnels that access the castle, the roadways into and out of the capital.  They all meet here.  This is a vast nexus of subliminal power, ancient and modern, lay and spiritual, real and imaginary.  Can you feel it?”  The entranced crowd nod. They can.  It’s here, the vibrancy, the energy.  If we pulse it up into our bodies I’m sure we can all fly. 

I tell them the story about how the late blind bass player and poet Dave Reid would be out on the town drinking and when  he’d had enough would find his way up here simply by sensing the ley lines.  He’d sprawl on the floor and thrash his white stick about until the police arrived.  What could they do with a drunk blind man?  They’d take him home.  Reid’s personal and free taxi service.  He pulled this trick many times although once, after the cops had unloaded him into his Cathedral Road bedsit, he chose to re-emerge and started flailing about again in the road there.  This time the police were not so obliging.  They took him back, all the way to the psychic centre, and then into police HQ nearby where they locked the drunken blind man in the cells.  £25 fine and bound over.   That’s what psychic power can do.

The crowd laugh, in sympathy perhaps.  I’m doing well.  The cyst is in retreat.  Cardiff around me is real. The past merges with the present.

The tour finishes at the new library.  We’ve gone around the back of Wetherspoon’s Prince of Wales where the fake outline of St Mary’s Church hangs high in the air.  So much of the city is fake.  The West Gate, attached to the Castle wall, is a Burges recreation.  The stone circle in Bute Park is artificial, put there by the Gorsedd of the Bards when the Eisteddfod visited.  The Gorsedd itself a fake, imagined by antiquarian and all-round literary man Iolo Morganwg two hundred years ago and now a fabrication so long that it has become venerated.

At the Library, wedged in between the drinkers and the Wagamama diners, I perform the poem of mine which has been engraved onto the Library’s front glass.  It’s a list, as many of my works are.  This one rolls the characters – street and otherwise – who have made Cardiff into a reverberating chant.  Here, I tell them, the past really does become the present. 

Near this spot you could once
cross a Cardiff bridge
before that a Norman ditch
before that Welsh water
before that Roman mud

Was there much here
found in the clay?
socketed axe head
with converging ribs
bone fragment pot
a few microliths

Now all lost

What we’ve got instead is the vibrant future. Leg down, one peddle cycling, I head off.  Synovial bugger, you haven’t got me, not yet.

**

Prednisolone update:  dose reduced to 1 mg / 2 mg on alternate days.  Ghosts of unsettled sleep and fear of crowds finally put to rest.  Does the wonder drug ease pains from the cyst?  Jury hasn't told me yet.

Creative Update: since March 2012 the house hunting, house purchase, property development, battles with planning and with Welsh Water, management of project, finding the money, selection of builder and then actual building with its noise, disruption, neighbourhood agony,  super stress, dust and constant timetable readjustment “they’ll put the flue liner in tomorrow”, they don’t, you ring up to complain, they don’t get back, all this has taken its toll.  Writing has reduced to a trickle.  Blog meander.  A few e-mails. No poems.  Not a new piece of verse in almost 9 months excepting the RS celebratory ode as a new commission, proving, I guess, that it can still be done. 

Creative Future: kick start, soon.

House Update: have moved, Southminster a dead duck.  Bronwydd glory with its trees and peace instead.

Status: married, again, and it’s wonderful

Car: Ford escort staggering on but on its last MOT and has to be changed.  Can anyone get enthusiastic about these things?  Not me.

Family: enlarging.

Music: Georgia Ruth, Ray Charles, John Fogerty, The Ventures, Max Richter – bought them this month.

Books: Edging The Estuary – the trail along the waterway – due March then June, then mid-July  and now July's end, 2013.  My fear of having a title out at the same time as the Eisteddfod boom at long last realised. 

Films: went to see Man of Steel and it was like being inside a computer game.  

What’s on the player as I write this? Neal Casal.  He visited Chapter once.  I somehow managed not to be there.


Thursday, 13 June 2013

By Bike

Predicting when it will strike is rather like trying to tell when the next earthquake will ripple, out there, along the San Andreas fault.  There’s a whole science built around trying to tell when the earth will next quake.  Armies exist of researchers, observers, record keepers and data gatherers.  But my synovial cyst, the one there in my lower spine, bulging like a peanut, a jelly bean, a leak of oil coming out of the gearbox that is my no longer that powerful back - that one has only me keeping track of its meanderings, its appearances, its pressure points, its miserable actions and reactions
I’ve been tracking it for almost a year now.  I use a spread sheet – giving it daily marks on the scale of 1 to 10.  1 equals barely discernible. 10 is screaming agony.  I’ve got to 8 and often hit 7.  The last time was on the way home from the Park Plaza bar in the drumming rain, Guinness sloshing inside me.  The discomfort just got to me. I had to sit on a university wall up beyond the Queen Street rail bridge.  Wait there to be rescued, rain in my ears, rain down my neck, rain in my face.  But sitting did hold the pain back.

I showed the spread sheet to my specialist.  Showed him the highlights anyway.  He took absolutely no interest.  They come and go these things, he told me, waving my scruffy bit of paper away.  They are hard to predict.  We have to wait and see if they are unbearable.  Are they unbearable right now?  I’m sitting there in his patient’s chair, stress banging through me on account of how I’m sure any minute he’s going to recommend me for a major op, metal inserted, walk with difficulty, never to be the same old me again.  No, they’re not.  I tell him this truthfully.  They aren’t.  This consultation morning unaccountably and unpredictably I’m utterly pain free.

The following week, however, it all comes rolling back.  The need to sit down all the time to gain relief.  Or to stand at a funny angle, leaning forward to out to the right.  It alleviates things.  I do it in the queue at the single basket till in Marks and Spencer’s.  Fellow shoppers look at me as if I’m a weirdo.  A loon just arrived from the farm.  Just got in from Mars, I tell them.  I have to stand like this because of the gravity. I smile.  They turn away.

I’ve moved house, too, which has made things worse.  There seems to be a direct correlation between stress and discomfort levels.  It’s as if somehow  the raised shoulders and strained stomach that accompany worry unwittingly open the neural pathways to the doings of the synovial cyst.  Let the bastard through.  Let him beat me once again. 

Not that I’m really that keen on allowing anything to actually beat me.  I fight back.  I’m trying whiskey this week which, despite not really doing much to interfere with the synovial process, certainly makes life feel a lot better.  In the new house I’ve got the single malts – I have a collection now – in a line at eye level in the kitchen cupboard.  Like books of poetry by poets I admire.  Inspirational and always worth returning to.

I forgot to take the prednisolone yesterday and, if truth be told as Nessa would say, I may well have forgotten the day before too.  Post move the old routines have all collapsed.  I barely know where I am.  I opened a box marked in the removal man’s scrawly hand as “shoes”.  It contained cushions.  I did see a box labelled “drugs” in the back of a new cupboard somewhere but have yet to find them again. 

The Brompton I have found.  My folding bike sits, collapsed like a transformer, under the stairs.  I’ll be on it tomorrow.  Leaning out over the handle bars at that Martian angle, moving while sitting.  A painless process.  And I can do it in the streaming, fresh faced,  open and very earthly air.


On Saturday 22nd and Saturday 29th June, 2013 I’ll be conducting a Cardiff delta exploration, to be done by bike.  The estuary that is Cardiff revealed.  The city you barely knew existed.  Two and half hours of anecdote, cycling, poetry, alternative history, topography and comment.  If you don’t own a bike we can loan you one.  More details can be found here http://www.cardiffcycletours.com/real-cardiff-by-bike/  No mentions of prednisolone nor synovial cysts.  Just maybe the odd Martian lean as we cycle into the wind. 


Friday, 19 April 2013

Facet


So it goes like this.  I’m in the car driving back from the builders merchants with a boot full of home improvement requisites (batteries, screws, rubber gloves, a new saw with which to tackle the dead tree, a bucket, escutcheons, door knobs, glue) when the phone goes.  Being ultimately lawful I negotiate the bend and get myself stopped on the kerb before I take it.  With a voice sounding like something direct from Stella it’s the hospital.  Ringing me. Gosh.

It’s  UHW X-Ray here.  We want to get you in for your facet joint injection.

What?

Your facet joint injection I’ve got you down here for one. Mr Finch.  Yes?

Yes, but that request was made months ago when was in real pain.

Oh there’s a three month waiting list see love sorry can we do you Friday?

No.  I mean I was in pain, enough to boil eggs on my back at the time,  but in the nature of this cursed condition that’s passed now and I’m pain free again.  Well, relatively.   I don’t see the point.  Can I defer it?

I’ll put you down as a cancelation then.

No, don’t do that.  I needed that injection when it was the only thing available to me that could alleviate the pain and then it wasn’t available.  I had to wait.  When I rang up your department said they’d get back to me soon.  And it’s been 90 whole long days.  If I’d turned up at A&E after falling down drunk you’d have got me round to X Ray and checked my bones for breaks almost immediately.  But because I suffer from a condition (as opposed to getting pissed which I guess is just part of daily life) I’m slung on an NHS waiting list.  That’s not equitable.  I want the thing deferred so that next time condition strikes I can call down my already done waiting time and have the thing straight away.  Can I do that?

I listen but she’s gone.  It was my use of the word “equitable” I’m sure.  The line is dead.

I check the private medicine website.  Facet Joint Injections.  Available within the week.  £500.  Nye, your great vision has become terribly muddied.  I decide to go to the pub instead.


   

Monday, 11 March 2013

Rebuilding


In the car park at Llandough the easterly wind is cutting through my jeans.  It’s March and the weather is following form.  There’s no one here, hardly.  Some workers on the hospital redevelopment, their vans dots the tarmac.  These are the trades in all their multiplicity -  plasterers, electricians, heating engineers – no job too big or too small – all aspects of building work undertaken – style added in olde English font, mobile numbers the only point of contact.

My appointment is for 7.45 am, an out of regular-hours slot beaten only by the 8.00 pm Saturday evening appointment I was once offered by X-Ray. The Llandough waiting room, a warm refuge full of happy posters and machines offering granola bars, rice cakes and healthy bags of nuts, has one other client.   In the vastness of the sea of chairs we sit not acknowledging each other.  He’s on sticks, unshaven, wears a builder’s check shirt coupled with trackie bottoms.  He’s got a Bluetooth hands free stuck in his ear in case anything urgent comes up.  Nothing does.

The receptionist has turned on  breakfast TV for our pleasure.  Primary colour vapidity delivered by a   well-groomed couple lounging in arm chairs.   Their voices bounce excitedly in that new century pre-fab high street manner where everything is perky bright and vicissitude is permanently banished.  The book I’m reading can’t compete.  It’s a history of the blues with stories of black men in river deltas twelve-baring themselves to fame and Muddy Waters sitting outside Mississippi juke joints thrilling to the sound of his first record coming at him out of the windows.  But before the hi-vol emptiness of early morning TV it’s a total non-starter.

Right on the button I'm called in and asked questions.  I’m  made to stand on tip-toe and have rubber-headed hammers tapped on my knees and lower legs.  Bend your knee.  Straighten it.  Fine. We, the consultant and I, gather around his computer screen and look at a flow of successive images. These were taken during my last MRI scan - my spine revealed in cross section.  Bones and the shadow shapes of muscle and cartilage. There it is, says the consultant, pointing.  The white blip of the cyst.  I’ve seen it before.  It looks like a seed – a flageolet or a butter bean.  It moves and presses against the nerve.  Is it hurting now?  No.  Excellent.  You are having a good day.  He smiles, indulgently.  We’ll let it alone for three months and I’ll see you again.  If it’s still a problem them we’ll have you in, push this muscle aside, cut out a bit of bone, drain the offending cyst  and then put some metal in there to hold you together.  I don’t know if I should be stunned or not.  I don’t say anything. We shake hands and I go - back out through the morning wastes of the TV drenched reception and through the double doors into the cold air. 

There’s a familiarity to all this.  The consultant spells out a future and then you find yourself  wandering the car park, your vehicle lost, your head full of fear and fury.  But I get straight to it, the green car of mine with the rust everywhere and the demister which hasn’t worked for three years.  I  climb in and drive back.  Rock and roll on the player.  Old stuff, like me.

At the house my construction workers are moving apace.  Where the dining-room wall once was are now acro props and dust.  Out back in the wreckage of the garden a cement mixer cranks and spins.  The walls of the new extension are rising from the flower beds.  Where they meet the house they mesh.  There are metal pins strapped across the cracks in the plaster.  A man in a check shirt is tapping the brick work with a hammer.  Another is squirting gunk from a syringe into the gaps.  They are similar processes,  surgery and construction.  Both start early, both remove rot, both fix by pin and glue.  One set wear check shirts, the other gowns and bright hats.   Both walk away saying see how you go.  If you have any trouble give us a call.  All aspects covered. 

Should I be worried?  Given the prospect of having to spend a fair slab of time on my back waiting for post-op recovery not to speak of running the risk of something going wrong and the pain not disappearing but increasing I guess I should.  But there’s been so much of this stuff, going on for so long and appearing and reappearing so often that I’ve come to accept this as the norm.  Just be grateful, I tell myself, that you are hanging on in.   Like I say in the poem:

Beat

John Tripp  59
B S Johnson  41
Arthur Rimbaud 37
Buddy Holly  33

Kingsley Amis  74
not managed him yet

But I will.



Tuesday, 19 February 2013

Beyond The Day Care Unit


Physiotherapy sits in a wasteland way up beyond most of the clinics I already know.  It’s deeper into the hospital than X-Ray or Pharmacy, both places where I’ve spent more hours on hold than I have with BT.  It’s beyond  Short Stay Surgical where I’ve sat in fear and trepidation waiting for catheters to be inserted and cameras on long flexible sticks to be turned on.  It’s out there, further than the cubby hole occupied by Radio Glamorgan, UHW’s own station.  Here Vince Savile, hospital porter and brother to the late ungreat and now late himself other Savile once deejayed.  Does anyone now listen to these enterprises?  There are nineteen presenters all beaming in the staff photo and twenty-three thousand visitors recorded as having visited the station’s new web site.  Local radio clearly rocks on.   Then there it is.  Physiotherapy announces the sign.  I’ve arrived.  The waiting room is dense with seats,  buff,  serried, uninviting.  There’s a rack next to reception where you can leave your crutches.  The art of the recycle. The places is like Lourdes.

I’m here to learn how manage.  What can't be fixed can certainly be accommodated.  So I'm told.

Rich, his name is on his badge, the man who will sort me out, is fitter looking that I was at his age.  In fact he’s fitter looking than I’ve ever been at any age.  With his huge healthy hands he takes notes, asks questions, learns about my case.  He checks my records, my graphs, my MRI scans on the hospital system.  He tells me that it’s the cyst that’s the issue and the way it bulges, flows, ebbs, and presses.  I had an idea it was. We can’t solve it here, he says.   But we can help manage.  Yep.  Manage.  Word of the age. 

I get a demonstration of lower-back specific exercises – stretches and flexes – things to help with the discomfort, when it flares.   He hands me a sheet showing the routine being done by a stick man.  Round head, smiling face, no hair, thin body.  Me.  To a tee.

Back home I do the stick man thing while staring out of the window.  Point hands at feet and hold for thirty seconds.  Sit up.  Bend back.  Breathe.  Repeat. 

Beyond are men here to build a new extension.  They have their hoods up against the cold and wear knee-high leather boots like they might have done  at the battle of Omdurman or when riding through the brush in the cowboy west.  Now it has stopped endlessly raining  they are digging up the patio.  They uproot plants and crack slabs into slivers ready for the arrival of the mechanical digger.  This wonder machine on tracks will excavate the footings.
  
By now, like me, this house had almost all of its innards explored and tested.  It’s old, it’s been around, it needs some tlc.  Rods have been inserted into cavities, coverings have been lifted to check the sub-structure.  Cracks have been discovered, stitched and sealed.  Roofs have been waterproofed.  Steps mended.  The framework has been stabilised.  Damp ingress excised.  Blood counted.  Temperature taken.  Wiring renewed.  Body declared to be about as okay as it’ll ever be “for a build of this age”.  It’ll all be okay for the medium term. 

Quite how long that medium term will be is no one is actually prepared to say.

The sky is cold, winter blue.  Uprooted plants and fragments of slab begin to appear stacked in the skip.  The dross we no longer need.  When they are done I’ll get the guy on the roof with the scraper and the claw hammer to have a go at Mr Synovial down there in my lower spine.   Hit it a couple of times, squeeze it out and then stick the incision back together with two screws, some hi-flo instant set grout and a metal strip.  Plaster over.  Allow to dry then paint.  You’d never know there’d been anything there.  Okay for the medium term.  That’s all I need.

I have a cup of tea and two naproxen.  Next week I see the neurosurgeon.  He does scraping out and re-grouting, so I’ve been told.  Does it with micro precision  and has an 80% success rate.  He doesn’t wear a hood and comes to work by BMW and wearing  patent leather shoes.   He probably doesn’t listen to a radio which has a large battery stuck to its outside with masking tape.  That’s my guess.  But how do I know?





Monday, 4 February 2013

The Blues


In the waiting room I have my head deep in my book.  It’s in so deep that when they call my name I fail to hear .  It takes the receptionist tapping her feet in front of me, files in hand, to get me to stir.  This is the Welsh National Health and I’m being called in more than fifteen minutes ahead of schedule.   Aneurin Bevan, your dream is coming true at last.

The trick is, of course, that after checking your weight and your blood pressure (what do you want me to do? I’ll need an arm) and your name and address, mother’s maiden name, medical number, GP details, birthdate and secret password (mine is arse, apparently there’s a move on to popularise these once discredited words) I get to sit in waiting room number  two.  Empty apart from me and my book.  Medical students come and go.  A trolley of files rolls by.  The leaflets on the notice board advertising the rheumatic hip self-help group  and what to do when you fall over flutter in its breeze.

I’m reading the late Robert Palmer’s Deep Blues, an excellent history of blues music.  Palmer was a music journalist and fanatical record collector with a personal library of blues albums that ran to thousands.  He’s explaining how it was that jazz improvisation came from negro string bands and early jump-up  groups having to extend the length of their numbers.  They had to do this to satisfy the demand of dancers who didn’t ever want to sit down.  Middle of this my name again gets called.  This time I hear. I pad my way to today’s target - the consultants room.

It’s all centred on this.  Me sitting there before the doctor, a pair of silent students arrayed left, my file in all its fat and paper-stuffed glory in the centre of the desk.  The pred levels we’ll leave as they are, 3 / 4  mgs on alternative days, the consultant tells me.  Get that down to 3 mgs each day by the end of the month.  The synovial cyst is the real issue.  Your MRI scans show that it might not be growing but  it’s certainly there.  They are so unpredictable these things.  It will take just a small shift  for the pain to start for you again.  She frowns sympathetically.  You are not in pain now?  I was last week but today, no.

There are drugs we could put you on, gabapentin for example, but it does have side effects.  I get read a list.  There’s everything I've heard before on the prednisolone danger directory and then more.  Fat face, night frights, pain everywhere, bleeding stomach, head spins, fear of the outdoors, suicidal tendencies, hiccups.  Get all those and you’d never leave your bed.  Not everyone will suffer from these side effects, she tells me, reassuringly.  Up to you.  For now I’ll pass.

We’ll see what we can do with your visit to the neurologist, she continues.  You’ve already been on the waiting list for 3 months, can’t be long now.  I’ll give him a call.

Then I’m back on the street.  Nothing actually prescribed and nothing new to do.  There are a few specialist consultations out there somewhere in the future, maybe a spinal injection if that department gets its act together and another visit to Rheumatology in six months’ time.

What would Charley Patton or Robert Johnson have done?  Sung about it a bit accompanied by their slide guitars, Pain Down My Leg Blues,  Hollerin’ ‘Bout Gabapentin, Shake That Synovial Thing  Mama, and then retreated to the bar.  Alcohol, the great cure all. If in doubt put half a bottle of Wild Turkey down your neck. 

Patton died at 48, Johnson at 27.  Doesn’t really give you hope.